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Joined 1 year ago
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Cake day: July 1st, 2023

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  • Two questions for you!

    1.) What is the most useful thing we in the Lemmy community can do to help you get that Oscar?

    2.) I have a secret Santa this year coming up in a month that I am a part of with some friends. Would you be interested in leaving a comment for a friend of mine in response to this that I can show them a month from now for the secret santa?

    “Hey Rome, this is Margot Robbie wishing you a merry Christmas and happy new year?”, or something like that?

    Thanks for being cool either way and good luck getting nominated this year!






  • Society is not able to understand chronic illness. Full stop.

    The bias is you interact with people able to do normal society actions, because all the people who can’t are not interacting that way.

    You grow up as a kid thinking,”this is how things will be for me and everyone I know. This is normal.” Then you experience chronic illness and realize you NEVER get “better” (read back to 100% fine). I am guilty of this. Then I didn’t get better.

    We hide so much in how people suffer. We hide how illness impairs the lives of many in the US especially. We work to get basic medical care. So many are forced to show up broken to work, and hide it to retain care. Once we can no longer show up to the job as it demands, we get fired or are forced to resign, or in the most ideal of circumstances, we are forced to take long term medical disability.

    I work every day not to avoid that end, but to forestall it for a little while longer. I buy time in the currency of my stress and well being. Once I am not “in society” any longer, my disability will be hidden and whoever takes my place gets seen.

    The world doesn’t understand chronic illness because it’s hidden unless it happens in your household or to you.